SOFT: Trisomy Family Support
Find resources for a new diagnosis, connect with a SOFT parent, and explore information for your family’s next steps.
Visit resource(opens in a new tab)Honoring EmmaLea through practical resources, connection, and compassionate support for families affected by trisomy 18.
Rooted in Burbank. Guided by compassion.

Wherever you are in your family’s story, a small next step can make a difference.
Explore trisomy 18 information and find organizations that connect parents with other families.
Explore family resourcesFind gentle support for pregnancy and infant loss, remembrance, and the people who love you.
Find grief supportExplore community resources for practical support, family needs, and your next step.
Explore local resourcesEmmaLea is the heart of this mission. Her name carries a family’s love—and a father’s determination to carry that love forward.
Created in her honor by Joseph Valenzuela, EmmaLea Cares is growing around a simple belief: families deserve to be seen, heard, and supported through every outcome.
Discover our storyFind resources for a new diagnosis, connect with a SOFT parent, and explore information for your family’s next steps.
Visit resource(opens in a new tab)Find online peer support after pregnancy or infant loss, including connections for pregnancy after loss. Choose the support that feels right for you.
Visit resource(opens in a new tab)Find local help with food, housing, utilities, and other needs through free, confidential, multilingual information and referrals.
Visit resource(opens in a new tab)These are independent resources, not EmmaLea Cares partners. Services, availability, and eligibility are set by each provider.
Our first chapter begins with practical information and connection. Our longer-term vision reaches toward a more supportive future for families.
Explore our visionClear paths to independent family, grief, and community resources—without requiring you to share your story.
A small program we hope to develop with qualified community partners, guided by families’ priorities.
Supporting credible progress in trisomy 18 research, alongside a future Pathways initiative for better beginnings.
Share a useful resource. Offer your experience. Explore a future collaboration. Help us build something thoughtful, one meaningful connection at a time.
Find your way to get involved